Parkinson’s Disease is a degenerative disorder of the central nervous system, mainly affecting the motor system. Movement is normally controlled by dopamine, a chemical that carries signals between the nerves in the brain. When cells that normally produce dopamine die, the symptoms of Parkinson’s Disease appear. The causes of this cell death are poorly understood, and currently there is no known cure to the disease.
Everyone gets their own version of Parkinson's Disease. Early in the course of the disease, the most obvious symptoms are movement-related. These include shaking, rigidity, slowness of movement, and difficulty with walking and gait. Later on, thinking and behavioral problems may arise, with dementia commonly occurring in the advanced stages of the disease. Depression is the most common psychiatric symptom. Other symptoms include sensory, sleep, and emotional problems.
Parkinson's Disease affects approximately 1 in 100 people over the age of 60, but, in rare cases, can appear at a young age as well. An estimated five million people in the world are living with Parkinson's Disease today. It is the second most common brain disease after Alzheimer’s
What are some of the challenges that research is trying to solve?
There is no objective test, or biomarker, for Parkinson's disease, so the rate of misdiagnosis can be relatively high. Current Parkinson’s treatments are limited in their ability to address patients’ medical needs and to remain effective over time. There is no cure to Parkinson's Disease currently.
Currently there is no objective test or biomarker for Parkinson’s disease. A biomarker is a characteristic, substance or process in the body associated with disease risk, onset or progression and an important tool in patient care and research. Example: cholesterol level for heart disease
A Parkinson’s biomarker would allow doctors to diagnose the disease earlier as well as help researchers test new drugs faster. The MJFF is leading a landmark, international study to find reliable and consistent biomarkers of PD progression – called Parkinson’s Progression Markers Initiative (PPMI). This study is the Foundation’s largest investment to date. It officially launched back in the 2010 but has since grown to incorporate new arms including one that will follow people both with and without PD that have genetic mutations associated with PD
PPMI is taking place at 32 sites around the world including the US, Europe and Australia.
The Michael J Fox Foundation is the world’s largest non-profit funder of Parkinson’s research. It funds promising research that will ensure the development of new therapies for people living with Parkinson's today, including:
Treatments that can slow, stop or reverse the progression of Parkinson’s disease aka a
Better treatments for unaddressed or under-addressed symptoms of the disease
Treatments to address the debilitating side effects of current Parkinson’s disease
To date, the MJFF has funded more than $450 million in research around the world. It intentionally has no endowment: every dollar raised is immediately deployed to advance research with the best chance of leading to new PD therapies and, ultimately, a cure.
More information on the MJFF can be found at https://www.michaeljfox.org/
The next Project Sahaara Fundraiser will be held on September 24, 2016.
In Hindi, the word 'Sahaara' has multiple meanings, depending on the context. It can mean 'support' , 'help', 'sustenance', 'anchor' and 'refuge'.
Project Sahaara aims to be all of these and more to those living with Parkinson's, and those trying to support them.
Project Sahaara was started by Abilash Krishnan in 2015 in Montreal, Canada. It began with the simple idea of a fundraising performance night. This inaugural event was received with overwhelming love and support, and the idea for a more long-standing initiative was born.
Project Sahaara is affiliated to Team Fox, which is the grassroots community fundraising program at The Michael J. Fox Foundation
Founded in 2010, Team Fox has collectively included over 8,000 fundraising members. To date, Team Fox has raised over $35 million for Parkinson’s research. Over $6.9 million was raised in 2014.
The MJFF conducts a monthly webinar on the state of research into PD in the world. Aside from this, a lot of current information can be obtained at : https://www.michaeljfox.org/foundation/news.html?tagid=50&navid=research-updates
We encourage you to reach out to us in any manner. We are always looking for more help and people to work with. If you are aware of any team/people we could collaborate with, please let us know. And finally, if possible, please do donate.
The Michael J. Fox Foundation takes every precaution to protect donors' information. When you submit sensitive information via the Web site, your information is protected both online and offline. The MJFF uses the industry standard security protocol to communicate with your browser software, which makes it extremely difficult for anyone else to intercept the credit card information you send. Independent audits are also conducted on its practices to ensure the privacy, security and appropriate processing of your information on their site.
Project Sahaara donates all funds raised to the Michael J Fox Foundation. 89 cents of every dollar spent by the MJFF goes straight to research efforts.
Upon clicking on the "Donate Now" link, you are redirected to Project Sahaara's portal on the Team Fox Website. There you will be able to make your donation through XYZ.
Yes, The Michael J. Fox Foundation is a 501(c)3 nonprofit, tax-exempt organization designated by the Internal Revenue Code. When you contribute over $5 to the Foundation, you will receive a charitable tax receipt for income tax purposes. Their tax ID number is 13-4141945. For all other donations, your canceled check or credit card statement can serve as record of your donation.
You can expect your receipt for your donation within one to three weeks from the date you send it in. If you make your gift online, your receipt will be emailed to you. Tax receipts can be obtained for the USA and Canada.
A Montreal based initiative.
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